Quarterly Publication of the
National Federation of the Blind
of Minnesota, Inc.
100 East 22nd Street
Minneapolis, Minnesota 55404
Voice: (612) 872-9363
Web site: www.nfbmn.org
Tom Scanlan, Editor
Volume LXVII, Number 1, Summer 2002
WE ARE CHANGING
WHAT IT MEANS
TO BE BLIND
Cuts In Services To The Blind Are Protested
Yesterday, Today, and Tomorrow
Convention Alert!
For more than three years, blind citizens of Minnesota
have watched with great concern the gradual but steady dismantling of
services provided by State Services for the Blind (SSB) under the current
political administration. Earl Wilson, Commissioner of the Department of
Economic Security (DES), clearly expressed his personal feelings in
opposition to SSB as an identifiable entity within his department in his
letter dated August 31, 2000 (see "DES Commissioner Wilson Reveals His
True Feelings About SSB" in the Fall 2000 issue of the Minnesota
Bulletin). In the same letter, the Commissioner also demonstrated
his unfriendly attitude toward the National Federation of the Blind of
Minnesota, the state's oldest and largest consumer organization of blind
people. With this apparent declaration of war, Federationists suspected
that the future did not bode well for blind Minnesotans under this
governor, DES Commissioner Wilson, Deputy Commissioner Al St. Martin,
Associate Commissioner Mick Coleman and Assistant Commissioner of SSB
Bonnie Elsey. They do not support SSB as a separate entity in state
government.
THE CUTS: When the 2002 budget cuts came about, SSB
was faced with a $416,000 budget reduction - 45.564% of the DES
departmental cut of $913,000 - an exorbitant figure considering the fact
that SSB is only 5% of the DES total budget. We have learned that
Rehabilitation Services, another division of DES serving people with
disabilities, sustained an additional $244,000 of the DES cuts, making the
total DES cuts borne by units serving people with disabilities 72.289% of
the DES cuts.
"WE HAD TO DO IT," a myth: DES officials claim that
when the budget cutbacks of 2002 were called for, they "had no choice but
to target SSB, because SSB was the unit with more state funding." While
on the surface, this may seem credible, it takes only minor checking to
discover that there were other options than cutting the
services-to-blind-people aspects of SSB. The cuts to SSB were unfair and
disproportionate to its budget within DES.
During the past three years, SSB Assistant
Commissioner Bonnie Elsey, while steadily cutting entire programs serving
blind people, has promoted a vigorous administrative buildup at SSB. She
has created the following positions: a statistician, a webmaster, a
business services manager, a chief technology officer, a central office
administrator, and a manager for the self-sufficiency unit (besides the
supervisor it already had) - six additional high-paid administrative
positions.
Furthermore, Ms. Elsey retained two high-paid
"researchers," whose annual salaries are reputed to be $60 thousand. They
are paid with Social Security reimbursement funds, the use of which Ms.
Elsey has broad discretion. In other words, she could have used those
reimbursement funds for providing services to customers. Thirteen SSB
service-delivery staff were laid off and five additional staff positions
were held vacant, while the administration and "researchers" remained on
board. All of the thirteen layoffs, except the two blind employees, found
jobs elsewhere in state government. No staff layoffs occurred in DES
outside SSB.
In summary, cuts to SSB programs and services made by
Ms. Elsey during her time in office include:
1. Services to children were completely wiped out.
2. The SSB Store, the only place blind Minnesotans
could purchase blindness-related items available nowhere else, was closed
as of July 31, 2002. Catalogs from other distributors of products for the
blind are in print, which is not accessible to most blind people, and the
Internet requires a computer, which the majority of blind people still do
not possess.
3. Thirteen staff positions in service-delivery areas
were cut.
4. Five additional staff positions were held vacant.
5. A statewide program of independent living skills
training for blind seniors has been wiped out. Training for older blind
people is being dumped on the welfare system.
6. Staff training in blindness has been eliminated.
Thus, newly hired staff at SSB have little or no knowledge or
understanding of blindness.
7. SSB rehabilitation counselors no longer have
authority to purchase services for their customers without seeking prior
approval of a supervisor for every dollar spent. All services are
micromanaged by upper-level administrators.
8. The Communication Center lost business when Ms.
Elsey attempted to transfer responsibility for transcription of cassette
tape and Brailled college textbooks to the colleges and universities
without holding required public hearings when the State Plan was altered.
Any hearings she holds now will be after-the-fact. Now, due to budget cuts
and layoffs, the Communication Center staff has been greatly reduced, and
the Dial-in News program will be automated.
9. On March 20, 2002, Ms. Elsey sent out a memo
informing self- sufficiency staff that as of July 1, 2002, they would no
longer be permitted to visit customers in their homes, except by a
"written protocol" to be announced later.
10. Ms. Elsey made all decisions without consulting
either consumer organizations or the Rehab Council for the Blind. None of
the three previous Assistant Commissioners of SSB would have allowed these
budget and program cuts to occur without coming to the consumer
organizations and the Rehab Council for the Blind for assistance. No such
effort was made by Ms. Elsey or any of her superiors in DES.
SSB has been very poorly managed by the current
administration. The primary interest is Workforce Centers, which have
little or no service relevant to blind people. Ms. Elsey knows nothing
about blindness or the services blind people need in order to become
independent and employable, and she has given no indication that she is
willing to learn. SSB has become a job-service model with very little
resemblance to the relevant service-providing agency blind people want and
need. Ms. Elsey has absolutely no interest in blind people or improving
their opportunities for better lives. Her sole interest is redirecting
SSB funds to the Workforce Center system.
THE SOLUTION: It is clear from what has happened
during the past three years that neither the Ventura administration, nor
the Legislature has been willing or able to protect SSB from the severe
reduction in services, staff and funding it has undergone. The
hand-wringing claims by DES officials that they were powerless to do
anything, and the inability of the Legislature to enforce its own Chapter
220, 2002 Session Laws, compel us to conclude that the only solution for
blind citizens of Minnesota is to work for the establishment of a
free-standing agency to serve blind people of the state. By doing so, we
will have better assurance of having more friendly and supportive
administration of SSB, and the Legislature will be better informed on
decisions which impact SSB. The current system has failed everyone,
especially blind people. Minnesota can do much, much better.
(BACK TO TOP)
(Editor's Note: This article is reprinted from the
August 2, 2002 Star Tribune.)
Advocates for the blind charged Thursday that the
state's Department of Economic Security is balancing its budget on the
backs of blind Minnesotans.
State Services for the Blind, which accounts for about
5 percent of the department budget, is absorbing 45 percent of the
department's budget cuts, said the National Federation of the Blind in
Minnesota.
Some casualties of the cuts are a store that sells
merchandise for blind Minnesotans, the Dial In News telephone service and
13 staff positions.
"Yes, everybody has to share the cuts," said Joyce
Scanlan, president of the federation, which held a protest in St. Paul.
"But the percentage we got is way beyond reason."
The Department of Economic Security, like all state
agencies, is implementing the budget cuts required by the Legislature this
year. It must cut $913,000, and $416,000 of that will come from services
for the blind.
The department argues that even though it is a large
agency, with about a $300 million annual budget, most of its funding is
federal and is exempt from the budget cuts. Programs for the blind was one
of the few areas that could be cut, said Bonnie Elsey, an assistant
commissioner who oversees State Services for the Blind.
"That's the only place we could look at," she said.
"Those were the rules."
But Rep. Dan McElroy, R-Burnsville, chairman of the
House Jobs and Economic Development Finance Committee, which oversees the
department, said he wants to know if the department "looked under every
other rock" for possible cuts.
"I'm concerned that, in an agency with 1,700 employees
and a wide array of programs, is this an example of protecting a
bureaucracy at the expense of direct services?" he said.
"What about the fairly substantial departments for
accounting, human resources, building management, technology -- how much
of those functions are allocated between state and federal funds?" he
asked. "Is federal funding a reason for what's been done or an excuse for
what's been done?"
That said, McElroy said he doesn't think the $416,000
cut to Services for the Blind is excessive, considering that it has a $15
million budget. He also said he is not overly concerned about the closing
of the blind store, because most of those items are available in catalogs
or on the Internet, he said.
Meanwhile Sen. Dick Cohen, DFL-St. Paul, chairman of
the Senate budget division covering economic security, said he plans to
hold hearings on the cuts later this summer.
About 50 people protested the cuts outside the offices
for State Services for the Blind in St. Paul on Thursday. They are among
an estimated 40,000 Minnesotans who are blind, Scanlan said. Some brought
their guide dogs. Most held white canes. And nearly all carried signs with
slogans such as "Cut administration, not services" and "We need service,
not consultants." The elimination of three services counselors for young
children and their parents is particularly troubling, said Jennifer
Dunnam, 31, a University of Minnesota Braille transcriber. She said her
parents tell her to this day how important it was for a counselor to come
to their home, when she was young, and to teach them what to expect from a
blind child.
"She helped us have a vision for what our life could
be," Dunnam said.
The group had several other complaints.
ù The federation was not consulted or informed about
the cuts, although previous administrations did.
ù The budget bill encouraged agencies to cut
administration, not services. Those who were laid off were service
providers.
ù The store for blind people, which offers some items
not available elsewhere in Minnesota, was closed July 31 with less than
two weeks' notice.
Elsey said the department had no choice. It had
directed agencies not to cut any state programs that leveraged matching
funds or program money that was transferred to other community agencies,
she said.
"Basically what you had left was $3.1 million of state
operation money," she said. "And State Services for the Blind had $2.3
million [of it]."
Elsey said she is trying to replace some of the lost
services. She hopes to replace the state store with a private vendor, and
the Dial In News program with a less-expensive digital service that
doesn't use human voices. She also said she is contacting philanthropic
foundations for help.
"It's a temporary setback, but I hope in the long run
some of the services can be restored," she said.
(BACK TO TOP)
It was in March, 1951 that I came to Minneapolis for
adjustment-to-blindness training - at that time called "pre-vocational
training." The Minneapolis Society for the Blind (now called Vision Loss
Resources) had an excellent instructor named Paul Preddy (later he got
fired for believing in blind people). In fact there were a bunch of
instructors that were too good to the blind so they were kind of eased out
of their jobs.
While in training, I heard about an organization
called the Minnesota Organization of the Blind (MOB) - but it was in
whispers. One time I asked someone about the group, and the response was,
"Well, maybe ... maybe ..." But then one Saturday, the last Saturday
before Memorial day, a fellow by the name of Chuck Linchin and I didn't
know what to do with ourselves. Chuck was already a member of the old MOB,
which is today the National Federation of the Blind of Minnesota. Chuck
said, "let's go over to this place on Eustis-- you've never seen it,
Andy," which I hadn't. We went there, and you know what I saw? These
same people, but with life, and debating issues. Listening to the talk at
the 2001 state convention, I thought I was back fifty-one years ago on
these same issues with Services for the Blind - but much worse. At least
Mr. Potter and crew had an interest in blind people, and they wanted to
learn more about the subject. That was in our favor. [C. Stanley Potter
was a longtime director of State Services for the Blind].
The way they debated this stuff, it was really
interesting. Chuck and I didn't stay for the dinner because we were
paying by the month over at the old Field Hotel, the Minneapolis Home for
the Blind, and so we had to collect our dinner. But I believe the banquet
at that time was $2.75.
But we went back. On the steps between the first
floor and the basement landing at the old home on Eustis, I gave my first
dollar to Phil Houghtelin [treasurer at that time] - and so I'm here
today.
Like many of you, I was a little afraid of things.
One night we had a dance; we had many good blind musicians that played,
and one of them is here today, Mr. Bill Laack. Many people have been in
the organization much longer and are still here: Maxine Schrader, Marie
Whiteker, Nellie Ask, Georgia Bredessen, and others. We've come a long
way in fifty years.
We were told in our class long ago that we were the
class that would set the blind world afire. Well, we did our part, but
there were a lot of things that happened before - going back to 1920 and
even before that. Even when the state established the residential school
for the blind, that was a step forward, and it grew. When we started the
organization in 1920, there were the same issues. They were fighting with
the Society for the Blind. The MOB built a home, since at that time you
couldn't just walk in and get an apartment as a blind person. So a home
for the blind was a desirable and necessary thing at that time, and it did
the job for a good forty years. But times changed, and we came up to a
time when a blind person could go any place and live, and we were part of
society. Once in a while somebody gets turned down yet, or they want
extra rent because we're blind, but we fight them through such
organizations as the NFB.
How many of you remember Mr. Joe Debeer? How many of
you were able to march around the Capitol with Joe? In 1939, the newly
elected Governor Stassen wanted to cut the aid to the blind program from
$21 to $10 per month; he thought the blind were getting too much money.
Of course those were depression figures, but they were there. Joe got the
League of Women Voters and many blind people, and they marched around the
Capitol for three days. Governor Stassen was a pretty good politician
actually, and when he knew something was wrong, he changed it. No
eleven-dollar cut: eleven-dollar increase! That's what Joe contributed.
How many today would have the courage to get up and march with him and the
League of Women Voters? How many of you, if you were working for the
state government at the time, would have marched with him? Would you
stand, or would you fear. I can understand if you would fear for your
jobs.
Those things happened before our time. In our time we
started to fight for such things as tax breaks on real estate. Many blind
people found out it was important to have their own homes, but they needed
a break to be able to stay in their house or afford to buy it, because
wages were low. Ingwald Gunderson, a member of ours, fought hard for this
legislation. Some of you are benefiting from this today. We worked for
such things as better Social Security, better incentives for learning, and
opportunities in the Civil Service program. I and several other people
once took a test for a job at Services for the Blind, and we all got a
score of 76.3; it was a good way to get rid of us.
When I came into the vending program, there were 24
stands; today there are 63. The income is about five times what it was in
1951. The average in the vending stand program today in Minnesota is
$36,000 a year. Those are just some of the things we accomplished.
We fought NAC (the National Accreditation Council for
the Blind and Visually Handicapped) all the way, and we won. That's why
last summer when they came to the National Convention, I supported our
administration on the resolution. NAC wanted to meet with us, and they
did have a meeting. Some people wanted to amend the resolution, and that
would have put us in a much weaker position. I know a labor union
organizer who started young; he was negotiating with a company that was
going to give a quarter raise. The union was asking for 40 cents; they
should have gotten at least 35 cents from bargaining, but instead, they
only got 15 cents because the company saw that the employees were not
unified. That's why I voted to support Marc Maurer and Peggy Elliott on
that resolution on the resolutions committee, because I wanted to bargain
from strength. We are a strong organization with many accomplishments.
The Society for the Blind matter, we changed attitudes in the country by
fighting that with people like Joyce Scanlan, Jim Brennan, Larry Kettner,
the Schraders, and my own brother the late Joe Virden. At that time Joe
was an employee of the Society.
We have many accomplishments today. Does it end here?
No! It was a cloudy, gloomy day in 1951; today the sun is shining. Our
goals should be many; we know who we are, and we will never go back.
We have other problems ahead of us. The new
leadership - this will happen in St. Cloud, too. I'm a
seventy-four-year-old man, and do not desire ending my involvement but
nature will dictate the end. But let us look ahead. What I would like to
see for the future: That we get a free-standing services for the blind.
If we have to be under some bureau, at least that it's on our terms and
something friendly to us, identifiable, and all programs concerning blind
people be kept together. We must continue to fight for that cause, or
else all this new technology will be stifled or maybe even go down the
drain.
We need to do more for seniors. In my apartment
house, in the last four years, we've gotten twenty people who are legally
blind. That's a house of seventy- four apartments. It is a lot, but they
tell me it's quite common in our area of the state. And here's what we
have to think about. I didn't know about this at the time, but one day a
blind person with macular degeneration in my building fell down the steps.
She wouldn't use a walking cane or a regular cane, or else that would have
been prevented. She fell because she wouldn't take elevators going down;
going down on elevators scared her, but she never told anybody. She fell
down the steps, and for three days she didn't know who she was. Is that
what we want for our seniors - any seniors? I don't think so.
I'm glad Senator Ellen Anderson (D--St. Paul)
sent an aid to our state convention. I think to be really influential in
the legislature, we need to establish chapters in all parts of the state.
We need to reactivate Duluth; we need a chapter in the Marshall and
Redwood Falls area, in the Crookston area, in all the corners of the
state. And a very controversial idea is that I think we need a St. Paul
chapter. You know why? Because the culture of St. Paul is so different.
We need to be able to work with the St. Paul government more effectively,
to be in their programs for the disabled, to have those contacts. There
is no reason two chapters can't work together. I know it's a "pipe dream
by Andy Virden", but I hope you guys take it seriously.
I feel like Moses when the Lord said, "you can look at
the Promised Land, but you're not going to enter it." With all the
technical things that are coming along, I don't know how many I will
learn. The future is ours if we want to commit ourselves to our life. We
know who we are and we will never go back.
You may wonder why I'm looking at the future. An old
professor friend of mine from St. Cloud State University told me, "A
person is really civilized if he's willing to plant seeds for oak trees of
which he will never see the shade."
(BACK TO TOP)
During those few brief months when Minnesota isn't
entirely covered by snow, I like to wake up on a Saturday morning, throw
on a pair of sweat pants, and head over to my neighborhood park to shoot
some hoops. It's good exercise, a great stress reliever, and a lot of
fun.
However, to put it mildly, there are no WNBA scouts
beating down my door to offer me a million-dollar contract. To put it
bluntly, I stink. On a good day, I shoot twenty-five percent from the
point and my dribbling and rebounding are pretty comical. At least once
an outing I will dribble the ball on my foot and have to run after it in
order to prevent it from rolling into Lyndale Avenue.
One morning when I was shooting particularly poorly,
it occurred to me that I might be a better basketball player if I had good
vision. I don't have much in the way of depth perception and I reckoned
that this could be the reason that many of my shots fell short of the
hoop.
This thought disturbed me, so I pondered it for a
while. It was true, there was no use in denying it. If a magical fairy
suddenly appeared and waved her magical wand and gave me 20/20 vision, my
performance on the basketball court would most likely improve.
However, this one magical stroke would not transform
me into Sheryl Swoops or Rebecca Lobo. For starters, I am five feet three
inches tall - which is not an optimal height for a basketball player.
When I play against my baby sister, she consistently throttles me 20 to 4
because she is five foot eight and can knock my shots right out of the
air. Secondly, I have two left feet and when I am not dribbling on them,
I am tripping over them. This lack of coordination definitely diminishes
both my offensive and my defensive effectiveness. But the most important
reason why I will never be a superstar is that I don't practice. I play
for an hour two or three times a month and as with every other endeavor in
life, if you want to excel, you have to work. There is little doubt that
if I weren't blind, my life would be easier in certain situations.
Earlier this evening I could have thrown my groceries in the trunk of my
car rather than hauling them on my back. But if I could have done this, I
wouldn't have burnt off some of the calories that I was about to consume.
When I was in Atlanta for the NFB national convention, I could have read a
map rather than asking passers-by which street I was on. But if I didn't
have to ask people for information, I would have missed the opportunity to
meet several very interesting Atlantans. In fact, I wouldn't have been in
Atlanta at all. When I was in college, I possessed none of the skills of
blindness, had never met another blind person, and couldn't utter the word
"blind" without choking. One night, I was riding around town with my best
friend smoking cigarettes and talking about life and the future and all
those deep subjects college students tend to dwell upon. I confessed that
I was really depressed because I had realized the inherent unfairness of
my life. I had to deal with all the usual problems that everyone must
deal with in the course of living - love, loss, money, career, death and
taxes - but I also had to deal with the "eye problem" that put me at an
intrinsic disadvantage. I had an added, abnormal, unrelenting burden of
frustration, fear, and isolation to bare which made all my "ordinary"
troubles much more difficult.
It took me a long time to figure out that blindness
doesn't have to be a giant cloud that casts a cold shadow over the whole
surface of my life; that it doesn't have to control my daily activities or
taint my experiences. Two things had to occur in order for me to change
my perception. First, I had to meet, observe, and really get to know
active, productive, happy blind people. I needed to see blind folks who
worked, did their shopping, and went to meetings and parties. I needed to
understand that they didn't wait around for a sighted person to accompany
them or stay home because it was too dark outside. I needed to have
concrete, living examples of the notion that blindness can be just an
ordinary part of an ordinary life.
Secondly, I needed to make blindness an ordinary part
of my ordinary life. I needed to get the skills that would enable me to
efficiently complete the tasks that presently seemed so arduous like
reading and getting around. I needed to learn Braille, how to use a
screen reader, and how to use a long fiberglass cane.
So now that I have seen that it is possible and been
taught how to make it happen, I have been able to put blindness in
perspective and see it for what it really is. It may be irritating or
inconvenient at times, but it doesn't rule my life or ruin my basketball
game. I think Kenneth Jernigan said it best in his speech Blindness:
Handicap or Characteristic: "if blindness is a limitation (and,
indeed, it is), it is so in quite the same way as innumerable other
characteristics to which human flesh is heir. I believe that blindness
has no more importance than any of a hundred other characteristics."
(BACK TO TOP)
It was a hot spring day at the beginning of May, and
as my mother drove me to the Greyhound station with my suitcases piled in
the trunk of the car, I silently said goodbye to Lafayette, Louisiana. It
had been nice growing up here, but it was time for a change. I needed to
be free, and I just didn't think that my chances of doing that here were
very good. I needed to be somewhere else so that I could be happier and
more independent.
"Em," my mother said after a series of sniffles,
"You're always welcome back home if it doesn't work out in Minnesota."
I stepped onto the bus knowing that I had made the
right decision. It had taken lots of courage and independence and
inspiration from others for me to decide to take such a big step, but I
knew that I could no longer live the way I had lived while growing up
anymore. I had thought I was happy with this isolated life, but after my
brief visit to Minnesota over the Christmas break, I started to realize
how much I had been missing. I was introduced to how much more
independently I would be able to live if I would decide to move there
permanently.
My life as a blind person growing up had seemed pretty
normal up until my last two years of high school. I had taken summer
training courses at the Louisiana Center for the Blind in Ruston, and
after being introduced to the NFB I realized that there were so many
opportunities out there for me that I had never even explored. After my
training, I realized that there were things I could be doing to make
myself stand out more in school and in social groups. But like every
other challenge, this wasn't always easy. Lafayette (the city where I
went to school) was half an hour away from the small town I lived in, and
the only transportation I had was the school bus. I took it to school
every morning and took it back home every afternoon. But the major
problem was the lack of transportation at night and on weekends. My
mother went out with her boyfriend most Friday nights and sometimes didn't
come home from his apartment until Sunday night, and my sister was
becoming old enough to obtain a driver's license and go out with her
friends, too. So that left me at home alone most weekends. What fun! I
was always afraid to ask my mother or sister to drive me to parties, or to
meet a group of girls to go shopping at the mall, or to join people for
dinner, because I knew it would interfere with their own plans. In fact,
I was even hesitant about asking them to bring me to chorus practice, Beta
club meetings, or cheerleading practice at night during the week. I knew
that it wasn't always easy for them to find things to do while they waited
for me to get finished. I surely didn't expect them to drop me off and
drive back home, only to have to drive right back into the city to pick me
up. In St. Martinville, the small town I had pretty much grown up in,
there were no movie theaters, skating rinks, major shopping malls,
taxicabs, or city buses. There were very few fast-food restaurants. But
the town was so small that I could walk to the store if I needed anything.
Since I had gotten some training in Ruston, I had no problem feeling
comfortable crossing the streets; the problem was trying to find a way to
travel long distances, especially to Lafayette, where there were actually
fun things to do. Friends from my school occasionally invited me places,
but when I told them that my mother and sister were out most weekends and
that I needed a ride, none of them wanted to go thirty miles out of their
way to pick me up, come back into town, go see the movie or shop for two
hours, and then go thirty miles back out of the way to drop me off, and
then come back. The one time someone did it for me, I could tell they
felt obligated and felt sorry for me, and that made it less fun and
enjoyable for me.
One Friday night when I was alone at the house, a girl
who had been friends with me when we were five or six years old showed up
with a group of her friends, and I could tell that they felt sorry for me,
because I was all alone while everyone else was out with their friends and
dates. After lots of encouragement, they took me bowling with them, but
again, I knew they were doing it just for me. I knew what these girls did
on weekends, and it wasn't exactly bowling. Truthfully, I wanted to hang
out with them at the drive- through daiquiri hut until one in the morning.
I wanted my mother to yell at me because I had once again broken my
curfew. I wanted all of it because that was what most of the other girls
my age were doing. But two hours later, they dropped me back off at home
and went on their merry way. After a while, I just kind of faded into
everyone's background, saying that I would be fine and hold down the fort
while the rest of the family went out. I would have done whatever it took
to make it easier for my mother, so if it was easier that I stayed home
while she went out, I was satisfied, knowing that she didn't have to worry
about me going out all the time. My sister was more than enough for her
to worry about.
But despite this problem, I never failed to make my
mother and soon-to-be stepfather very proud of my accomplishments. I was
always the obedient daughter who stayed home and out of trouble, and I
never liked to burden them by treating them like a taxicab, so I never
asked for rides anywhere, much less for anything else. My sister was
always asking my mother for money to go shopping while I hardly needed
much money in the first place, because I couldn't go anywhere. Before I
knew it, I was a senior in high school, making the honor roll most of the
time, and had gotten a music scholarship at the University of Southwestern
Louisiana (USL), and that's all they expected of me. As long as I made
everyone else happy, I figured I was happy. Every time I walked past my
mother's fiancée, Donnie, he proudly called out, "Emily Jude, the
scholarship winner. How's your studying going, sweetheart?" Or he would
say, "Boy, Em, I'm so proud of you; you won another scholarship. Your
voice sounds so angelic, and everyone just loves to hear you sing. One
day you'll become a music professor." But was that really what I wanted
to do? Did I really need to decide what career I wanted to pursue once I
graduated? My life was probably just beginning. I was always looked upon
as the "serious scholarly girl," and I wanted to spend some time having
carefree fun. I was tired of studying hours and hours a night so that I
could make good grades just to satisfy my parents. But there would come a
time when I would decide how I was going to lead my life, and it wouldn't
involve guarding the door at home all the time. I was serving my time
now, but when I graduated, things were going to change.
During the summer after I graduated from high school,
Donnie was such an inspiration to me. He kept telling me how proud he was
that I had chosen to go to college, and that I was such a smart girl. He
wanted me to know how happy I made my mother, and that he hoped I would
continue singing and doing well in school. But I had my doubts about
attending that particular college. I wasn't even sure if I wanted to
major in music and psychology. But I knew that my mother and Donnie only
wanted what they thought was best for me, so I was going to go to college
and try to make the best of it. As the summer went on, I continued being
the one home alone. Sometimes my friend Jenny, who I had met in the buddy
program in 1991, came over for the weekend since she lived so close to me,
but when we wanted to go skating or to a movie, we didn't always have a
ride. I was lucky when my mother and sister did give us rides, but I
didn't want to cause any trouble or interfere with their own lives.
But once I turned eighteen that summer, my sister
caused so much trouble, especially when my mother wasn't home. I was
asked to be responsible for my sister and her friends, and to make sure
that they came home at curfew and didn't drink alcohol in the house when
she wasn't around to watch them. I felt like I was being taken advantage
of and used. I wanted to go out and have my own fun, and instead, I was
up until two or three in the morning, trying to control my sister and her
friends as they came in and out, sometimes drunk and obnoxious. On more
than one occasion, I had to act as the responsible adult when the cops
came to the house. Most of the time, I spent hours washing my sister and
her friends' dishes, cleaning up after them if they got sick on booze, and
washing endless loads of bath towels after ten girls took baths in our
house before going out. In order to avoid yelling and screaming when my
mother returned on Sunday nights (which happened anyway once she found out
what my sister was up to), I had to keep the house in halfway decent
conditions. I couldn't count on my sister to do it. One time my sister
even tried to sneak her boyfriend into her room. I had had enough of all
of it by the time I started college. This was surely the life I didn't
want to lead. I was tired of being the good girl, the peacemaker in the
family who stayed home every weekend to keep the place intact. I wanted
to have my fun, too.
My first semester of college was pretty good. I was
motivated and enjoyed most of my classes, even though I found out that
psychology wouldn't be my major anymore. If anything, it would have to be
music. But even though there was some transportation in Lafayette, buses
only ran until about six o'clock at night. Taxicabs were sparse and not
very cheap, and sometimes I waited almost two hours for them to arrive. I
simply went to classes during the week, and as Donnie had promised weeks
before I had started school, he "rescued me every Friday afternoon" and
took me back home to St. Martinville. During this time, they stayed home
more often on weekends, because that was the only time they really got to
visit with me. Besides, I had laid down the law to my mother that I would
no longer baby-sit my sister and her friends, because if the cops showed
up again, I wasn't getting involved. I didn't want to have to be the
responsible one that made excuses for my sister's reckless behavior
anymore.
Then one week in the middle of October, a friend I had
met at an NFB convention who was from Minnesota came to visit me in
Lafayette and encouraged me to visit the big city of Minneapolis during my
Christmas break. When he saw how much transportation was lacking for blind
people in the area, he promised me that once I spent a week in the Twin
Cities area with all the city buses, being back in Louisiana would never
be the same. But time would only tell. As the time drew near, I got more
and more excited about visiting a different part of the country. I had
been to NFB conventions in Charlotte, Dallas, Detroit, and Chicago, but I
had never gone to another state alone. Before I even got to Minnesota, I
had a feeling that new doors would be opening for my future and me.
When I got there, this guy showed me how to get from
the airport into the city of Minneapolis using bus transportation only.
We did all kinds of things on our own: went to a football game, two
basketball games, went to a movie and a concert, visited the Mall of
America, went to the casino for the day, visited some of his friends,
attended a huge New Year's Eve party and were able to get home from the
bar on the bus after one o'clock A.M., and were able to enjoy ourselves
without having to worry about how we were going to get home. For once, I
trusted that the bus system would be pretty reliable, even if I had chosen
to go to the next city in the middle of the night. I had met so many
people who strongly suggested that I consider moving there. The only
problem with that, of course, was how I was going to handle the cold
weather. Despite my minor worry, I knew my mother would have lots of
major ones if I decided to move. I knew she wouldn't be a happy camper.
During my phone calls to her during my vacation there, she was already
hinting that she hoped I wouldn't decide to move there.
When I got back from Minnesota a few days after New
Year's Day, I was stunned to realize that I had two weeks before the next
semester of college started, and I had nothing to do. As the guy from
Minnesota had warned me, nothing was the same anymore, and all it took was
a ten-day visit to make things change. Suddenly, I wanted to make myself
happy; I was tired of making my mother, my sister, Donnie, and all these
other people who were close to me happy.
The fun and loving atmosphere around them suddenly
started to change into an unhappy one. For one thing, I didn't feel like
the honor student/scholarship winner, the way I felt before my trip. My
grades from last semester came in the mail, and when I found out that I
had made a D in psychology, being that my mother had never accepted D's
and F's when I was in high school, I couldn't tell her I had made the D.
I just hid my grades and was always nervous every time she asked, "Em, did
you ever get your grades? I never saw them come in the mail." I was
afraid that if she found out about the D by either seeing the transcript
or by my telling her about it myself, she would tell me how disappointed
she was in me and that she always thought I could do better than that.
After all, it was only one D, and who said I had to major in psychology?
But at the time, all I could feel was a sense of failure. I hadn't met my
mother and Donnie's standards, and they would think I was a disappointment
for it. They had always been judgmental against my sister's partying,
friends, schoolwork, and her other bad habits, so I had a feeling that if
I wasn't the smart college girl they thought I was, they would start
pointing the finger at me. I had always felt as though my mother had more
expectations of me than my sister to begin with. It was a good thing that
she actually had high expectations of me as her blind daughter, and not
the kinds of expectations a lot of uneducated parents might have about
their blind child compared to their sighted child. I just didn't want to
let her down after all those years of doing well in school and "always
doing the right things." But then I just couldn't ignore the letdown
feeling after leaving Minnesota and all the new friends I had made, all
the freedom, and all the new doors that had been open to me.
Then school started again. There was no excitement
about my new classes, no motivation whatsoever. All I longed for was
Minnesota and freedom. I had been told by many blind students who were in
the Federation--ones from both Louisiana and Minnesota--that one step to
my independence was that I needed to stop going home every weekend. So
the first change I made that semester was that I hardly went home at all
anymore. But my desire to gain independence wasn't the only reason I
stayed away from home. The other reason was because I wanted to avoid my
mother. I had decided that when that semester was over, I was going to
move to Minnesota, where I could truly start my journey to freedom. How
was I going to bring it up to her? I knew that she had suspected it, but
I just wasn't ready to tell her yet. I needed to make one more visit
there, just to be sure of myself.
The semester went on gloomily for me. I became
isolated on weekends, I wasn't motivated to study and do homework, and I
even started skipping classes, because I just felt too tired and unhappy
to go. Somehow, coming back after the trip North had made things
change--everything was different. The sense of feeling trapped and the
constant loneliness were more overwhelming than I could fathom, so much
that I became depressed. I slept all the time, was sick a lot, and had a
hard time eating healthily. The only time I felt happy was when someone
from Minnesota came to visit, or when I was visiting there myself. Every
time I wanted to do something on weekends at the University, I had to rely
on a taxicab, unless a friend gave me a ride somewhere. If the cab didn't
show up, I just sat in my dorm room, or fell asleep and had the recurring
nightmare that my mother held me hostage and trapped me in a small prison
cell just to make sure that I didn't move to Minnesota. When I visited my
mother and Donnie, all they did was interrogate me about how school was
going, which I had no desire to reveal to them. I couldn't stand the way
my sister purposely bragged about how good she was doing in school, and
about how proud my mother and Donnie were of her (the way they used to
feel about me). Furthermore, my mother was always yelling at my sister,
if she wasn't already mad at her husband (they were married at the
beginning of that semester). There were no more compliments from Donnie
and my mother about being proud of my accomplishments. Every single time
I visited them during the semester, I got back to my dormitory very upset
about something. After the fourth or fifth time I left there after being
involved in yet another scene with my family, I knew that this was only
going to get worse. I just needed to get away from all of it and start a
new life. It was time. I had done my share for them, and now they
wondered why I was becoming Miss Independent.
Then in the middle of March, I decided to announce
that I was moving to Minnesota in May. Inevitably, my mother was not
happy about this announcement. When she told Donnie about it, they
"invited" me to the house, sat me down, and spent two hours trying to talk
me out of it. They threw all these what-ifs at me: "What if you don't get
a good education? What if you break your leg or arm? Who'll be there for
you if you're broke and need money?" Sure, I had all these things to
think about, but as I had reassured my parents, I was levelheaded and had
always made pretty good judgments. In order to learn to live on my own, I
was going to have to figure these things out myself. If it didn't work
out, I promised both of them that I would come back home. But in my heart
of hearts, I knew that it would work out. Like a bird that was being
pushed from the nest, I would be on the ground not knowing what to do at
first. But in a short while, I would take off and learn how to fly in the
real world with all the other birds, and I would no longer need my mother
and Donnie to "rescue me on Friday afternoons."
The next month and a half was quite tough. The
nagging and what-ifs got considerably worse. My mother even yelled and
screamed at me, telling me that no one would support me and be on my side
to encourage me if I moved. She tried to get people to call and talk me
out of moving, or get other family members to try to make me feel guilty
about it. She even convinced my sister to call and make me feel guilty
about moving two days before she made her confirmation. My mother and
sister did everything they possibly could to stop me from moving. But it
was amazing how many people had encouraged me and told me how much they
believed in me and supported me 110 percent. There were very few people
like my mother and stepfather, who doubted that things would work out for
me, but it was those people who believed in me that gave me inspiration
and motivation. So what if I had a bad semester in college? I was going
to go to a better place, where I could be free and do things totally on my
own.
Two weeks before I left for Minnesota, my mother
called me up and insisted that I let her come to visit me in my dormitory.
I knew something was wrong when she walked in the door. She set a whole
stack of papers on my desk, and then the terrifying thought crossed my
mind: she had gotten into my school records without my permission. She
told me that she found out about the D, and that she knew that I was
flunking almost every class I was taking that semester. She used that as
an excuse to try to keep me in Louisiana; it was a last resort for her,
which still wasn't going to work. It was only pushing me farther away.
Now I really didn't want to live close by. The mother I had once trusted
seemed to be betraying me, probably using Donnie and his private
investigating skills to nose into my business.
"You know," my mother explained calmly, "I don't think
you should move. Your grades are not good, and you need to concentrate on
school before you do anything. We would like to see you come home more
often." She went on and on about why I should stay, and finally, I looked
at her with my beet-red face and vented all my frustrations out about why
I needed to get away from there, why I needed to be free. In a quavering
voice, I said, "Mom, I'm moving because I'm just not happy here anymore.
Coming home to you guys every weekend instead of being on my own isn't
going to get me anywhere as far as becoming independent. Staying home
while everyone else went out on weekends was okay for a while, but now
it's not. It's suddenly gotten old. I just can't do it anymore, Mom, and
the least you can do is try to accept my decision to move and understand
where I'm coming from. I need to do what makes me happy, not you or Errin
(my sister) or Donnie, or anyone else. I'm tired of having to rely on
someone else to get me around. And I know that going to Minnesota won't
always be hunky-dory, but I think that the only way for me to maintain my
independence is to give it a try and start learning how to live on my
own."
She burst into tears and told me that she would try a
little harder to gain my trust back and let me be independent, as long as
I stayed, but I was firm with her and told her that the decision had
already been made. In fact, I had already shipped a few boxes up there,
and I think my mother noticed the bare shelves in my closet. There was
nothing here for me anymore. Errin had her friends, my mother and Donnie
had each other, but I had started to feel like a circle trying to fit into
a square hole, or like a frozen pie in the midst of the produce section at
the grocery store--I just didn't belong there. The more I thought about
it, the easier it was for me to understand that I probably never had been.
The second time I had visited Minnesota was even better than the first,
and I felt like I had fit in. Everyone else in my family had gone their
separate ways, and now it was time for me to start my own life.
After that day, my self-esteem had risen a little,
knowing that I had stood up to my mother and told her for once how I was
feeling, but I still had that thick cloud of gloom following me wherever I
went. It was always my mother's voice, "Em, I just don't think you're
doing the right thing. You're failing school, and you won't be eligible
for classes in Minnesota. I don't think you're going to get an education.
It was very selfish of that guy to encourage you to move to Minnesota."
But I had to stop worrying about what she said. I was going to try to
prove to her that I would make it. It wasn't always going to be easy, but
life had lots of challenges, and I was willing to overcome them. So what
if I had a bad day? As Donnie had said to me before I had started
college, tomorrow is a brand-new day, and you can always make
improvements.
So on that hot day in May of 1996, I officially left
the nest. On the thirty-one- hour bus ride all the way to Minnesota, I
had lots of time to think about what I had left and what I was coming
into. I had bittersweet memories of the past, but now I had to focus on
how much better life was going to be in the future. As the bus moved
closer and closer to my new life, my new destination, I imagined putting
my whole past, the bad semester, and my mother's discouraging words into a
box. I imagined throwing the box with all the bad things backward,
opposite from where the bus was going, and that made me feel better and
better.
I got to Minnesota and slowly got settled in. I
rented an apartment that was reasonably priced, registered for some
college classes, and made more and more friends as time passed. Just like
the real world, times haven't always been easy. At first, I had culture
shock and found myself missing my family more than expected, but I slowly
adapted to my new surroundings. There were times when I felt lost in the
city, or times when I had financial hardships, but I realized quickly that
my mother wasn't just a few blocks down the road to help me out of my
problems. I learned to cope on my own, because this is what I had asked
for by moving North. I had felt the freedom I had never felt in
Louisiana. It was the freedom to make decisions for myself, go wherever I
needed or wanted to go, and be who I wanted to be. At first, my mother
called almost all the time, and still had hopes that I would figure out
that what I had done was a mistake and then come home, but over time, she
got less and less worried about me. I have chosen to let her see that I
can manage on my own.
Now, I have a decent job working as the receptionist
at BLIND, Inc. I answer phones
and take messages, I am the Braille embosser, I teach the buddies Braille
in the summertime, I schedule all the classes for the BLIND, Inc. students
all year round, I order supplies for the center, and I assist the
secretary in doing office duties such as copying, faxing, editing using
the word processor, and much more. I am not taking any classes this
semester, but whenever I am ready, I will go back to school. That doesn't
mean that I have given up on it, but there isn't anything wrong with
taking a break and doing something different in life. I no longer feel
pressured by my mother to go to college. For the first time ever, I get
to choose what I want to do in my own life. After all, I had been
attending school since I was a very young girl, and now I am choosing to
get some work experience for a while. I enjoy the job I have and making
my own living right now. It allows me to be able to do the things I never
had a chance to do growing up, and it also allows me to buy nice things
for myself and for others during their birthdays and Christmas that I
wouldn't have been able to buy if I was only going to school full-time. I
just bought a house last December, and that in itself makes me feel like
I've made something of myself. When I called my mother and told her I
wouldn't be able to visit last Christmas because I would be closing on the
house a couple days later, I could tell that she was thinking that I had
proven her wrong. She told me for the first time in years how proud she
was of my accomplishments, and she said that she trusted that I was making
the right choices in life.
Things are not the same for me down in Louisiana.
First of all, the relationship between my mother and I just isn't the same
anymore. I no longer feel comfortable talking freely with her, and I can
tell that she still resents the fact that I moved so far away from her.
But I couldn't worry about her or anyone else anymore. I had done what
made me happy. Secondly, staying there for just a week at a time is way
too long, because there is simply not enough to do. I feel trapped, not
being free to go wherever I wish. All my relatives and friends in
Louisiana have their own friends and their own things to do, and I hardly
even know anyone there anymore. I keep asking myself how I could have
endured this kind of entrapment all my life, but that was all I had known
before going out further into the real world to find my freedom. Working
at an NFB training center has given me many opportunities to show other
people what it is like to leave the nest and be free. Minnesota is truly
my home now, and I think that moving here, despite the brutal winters, was
the best thing I have ever done for myself.
(BACK TO TOP)
Exciting times are coming in NFB conventions. Keep
these in mind as you plan your activities throughout the coming year.
The Annual NFB of Minnesota Convention will be held on
November 1-3 at the Kahler Hotel in Rochester. Allen Harris will be the
National Representative. Members will receive a letter with details about
a month before the convention.
The Semiannual NFB of Minnesota Convention will be
held in April or May 2003 in Greater Minnesota. Members will receive a
letter with details about a month before the convention.
The National NFB Convention will be held at the Galt
House Hotel in Louisville, Kentucky during the first week of July, 2003.
This is a whole week of friends, fun, and serious business. It is a
chance to be part of the largest gathering of blind people in the world.
Full details will be in the Braille Monitor.
(BACK TO NFB OF MN HOME PAGE)
Les Affaires
Budget Cuts to State Services for the Blind
By Joyce Scanlan, President
Cuts In Services To The Blind Are
Protested
Yesterday, Today, and Tomorrow
By Andy Virden
Why I'm Not A Basketball Star
By Emily Wharton
Leaving The Nest
By Emily Fuselier
Convention Alert!