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OUR MISSION STATEMENT: To be a local support for families of children and young adults with an inherited neurological degenerative disease known as Batten Disease. We desire to educate the public of this disease and to raise funds on a local level so that we can fund research at the national level. |
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OUR GOALS: To educate the public about Batten Disease and raise research dollars. |
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OUR FUNDRAISERS INCLUDE:
Bash for Battens
Makin Noise in 2012 5k Run/Walk for Batten Disease (First Saturday in May)
Wine Tasting Event
Golf tournament in Waterloo, IA Beads for Batten Disease (available anytime) Brownies in a Jar (available upon request) Apple Pie in a Jar (available in season) Biking for Batten Disease (to be announced)
Click on the Event Calendar link at the top for details |
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Hoping to Solve the Puzzle |
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BDSRA - MN Chapter |
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